10 Reasons Why Duchenne Moms are Queens of the Universe

10 Reasons Why Duchenne Moms are Queens of the Universe

There’s no denying; without my mother, I wouldn’t have made it this far, and not just on a physical level, but every facet of existence.  Yet in the same light, I’ve also come to understand that she can’t live without me either.  It was only recently when I nearly...
Romance, in Light of Duchenne

Romance, in Light of Duchenne

They call me Superman; I have no superpowers.  They call me a warrior; I have no weapons.  A soldier they say, only, I wear no uniform.  It may be hard to believe for some, though I never had much difficulty, but I’m human, just like everyone else.  What I don’t...
Why Taylor Swift Belongs with Ricky Tsang

Why Taylor Swift Belongs with Ricky Tsang

Dear Taylor, You know that moment when you realize the pathway towards romance is no longer a part of your destination?  I often imagine myself surrendering to stage music from the golden days, dancing in the dark with no one.  The bittersweet melodies resonate within...
The Duchenne Guide for Tracheostomies

The Duchenne Guide for Tracheostomies

Following my spinal fusion surgery, the second major operation I had was the tracheostomy.  It was an emotional decision, but one that gave me another chance at life.  Every medical procedure is a risk, even the minor, which can be rather frightening.  Here is a list...
This is My Life: Ready, Set, Fight

This is My Life: Ready, Set, Fight

Running away is not an option when it comes to Duchenne muscular dystrophy.  It forces you to endure, even when you feel like things weren’t supposed to end up this way.  I remember in the fifth grade when I lost the strength to wheel myself anymore.  I had every...