by Ricky | Jan 4, 2016 | Duchenne
There’s no denying; without my mother, I wouldn’t have made it this far, and not just on a physical level, but every facet of existence. Yet in the same light, I’ve also come to understand that she can’t live without me either. It was only recently when I nearly...
by Ricky | Dec 30, 2015 | Romance, or Lack Thereof
They call me Superman; I have no superpowers. They call me a warrior; I have no weapons. A soldier they say, only, I wear no uniform. It may be hard to believe for some, though I never had much difficulty, but I’m human, just like everyone else. What I don’t...
by Ricky | Dec 24, 2015 | Letter Box
Dear Taylor, You know that moment when you realize the pathway towards romance is no longer a part of your destination? I often imagine myself surrendering to stage music from the golden days, dancing in the dark with no one. The bittersweet melodies resonate within...
by Ricky | Dec 14, 2015 | Self-Help
Following my spinal fusion surgery, the second major operation I had was the tracheostomy. It was an emotional decision, but one that gave me another chance at life. Every medical procedure is a risk, even the minor, which can be rather frightening. Here is a list...
by Ricky | Dec 9, 2015 | This is My Life
Running away is not an option when it comes to Duchenne muscular dystrophy. It forces you to endure, even when you feel like things weren’t supposed to end up this way. I remember in the fifth grade when I lost the strength to wheel myself anymore. I had every...
by Ricky | Dec 7, 2015 | Prose
During the initial seasons of The Big Bang Theory, I encountered a couple episodes encouraging bigotry towards the fair skinned. Raj, the East Indian character, went on to say to Howard, the Jewish: “You fail to take into account that even mute, I am foreign and...
by Ricky | Dec 4, 2015 | Duchenne
There always existed a bit of controversy surrounding the fact that I didn’t want to be an inspiration. I was even quoted in the Toronto Star for saying this a few years back. I, however, never understood what the fuss was about. Unfortunately, the “I” word is one...
by Ricky | Nov 25, 2015 | Romance, or Lack Thereof
Heartfelt girl-to-girl conversations make me cry. I want to be a part of them. I continue searching for ways to overcome the boundaries of gender, but if accomplished, my heart would still grow faint at the thought of those beautiful creatures, their wings brushing...
by Ricky | Nov 5, 2015 | Letter Box
Dear Duchenne Friends, When I joined our community some years ago, I set out to promote my first ever book that spoke in the perspective of a man diagnosed with this disease. It was not my intention to become one of our many voices. However, as I continued getting...
by Ricky | Oct 14, 2015 | Self-Help
The spinal fusion is probably your child’s first major operation. Perhaps you feel somewhat lost as a parent. My family and I were in the same situation back in the summer of ‘94. I was only thirteen years old at the time and everything seemed up in the air. Of...
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