by Ricky | Oct 12, 2015 | Duchenne
How do I encourage myself? Everyone has an escape, whether it be sports, going out, etc., but for those who are physically compromised, including myself, and spend a great deal of time in a mental environment, we rely upon our imaginations for motivation. One of my...
by Ricky | Oct 5, 2015 | This is My Life
Following my diagnosis in the summer of ‘88, nothing changed in my mind. I was still the same old boy I used to be. However, I ultimately noticed something different, in that I spent more time near the school doors than the playground itself. Before, it used to...
by Ricky | Sep 30, 2015 | Prose
Truth be told, I don’t care if this flies in the face of people living in la-la land. Sex surrogacy, prostitution, escort services, etc. for the disabled is still wrong. And it doesn’t matter if you’re missing out on “life experience”. It’s inexcusable, for...
by Ricky | Sep 28, 2015 | Letter Box
Dear Duchenne Boy, There isn’t a day that goes by when I don’t wish someone had written me something similar. No matter how many loved ones are near, adversity is an unavoidable reality you must face alone. No one can save you, except yourself. I’ve lived too long...
by Ricky | Sep 26, 2015 | Romance, or Lack Thereof
Have you ever had that moment when all you want is to begin a great love story, one consisting of what most people would think of as dysfunctional, even sick? That moment of philosophically analytical enlightenment, where you suddenly associate every sort of...
by Ricky | Sep 23, 2015 | Self-Help
Have you ever wondered why it hurts so much when love is lost? Romance is to give your heart without fear, but when it breaks, you become confounded with only pieces that remain. Some believe that it’s best to keep yourself preoccupied, but at the end of the day,...
by Ricky | Sep 21, 2015 | Duchenne
We’ve been fighting this war for the longest time, unbeknownst to the public. The government issued a nationwide alert for citizens to remain inside their homes, but there is no hope for anyone. What they didn’t tell you is that the best chance for humanity rests at...
by Ricky | Sep 19, 2015 | This is My Life
It was a quiet, rainy afternoon when I left the first grade for my muscle biopsy. There were grey curtains, fluorescent lights, and a giant window facing the darkness outside after they took a tissue sample from my puny left arm. I stayed for a week and had many...
by Ricky | Sep 17, 2015 | Prose
I find it amusing, every time those who fear the truth come to mind. There are so many things in life that we simply cannot avoid, no matter how much we try hiding from them. I’d rather face the harsh reality than voluntarily deceive myself, and not because I’m some...
by Ricky | Sep 3, 2015 | Letter Box
Dear Duchenne Moms, You’ll have to be much stronger than you already are. If no one should tell you, everything is not going to be okay. Nothing gets easier, while life remains merciless. I know it well, having to face this disease for such a long time. I may be...
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