by Ricky | Aug 26, 2015 | Duchenne
As one of the oldest living individuals diagnosed with Duchenne muscular dystrophy, I’m called an inspiration, practically on a daily basis, but the truth remains. Everyone who fights this disease encourages and motivates me to continue, despite the odds. Children...
by Ricky | Aug 17, 2015 | Letter Box
Dear Future Wife, There are places in my heart that are yours alone. In them I linger, thinking of you. As you plunge your quivering lips into mine, I gasp for my final breath in the softness of your mouth with teardrops in our kiss. Closing my eyes to this...
by Ricky | Aug 14, 2015 | Romance, or Lack Thereof
Sometimes I wonder why it’s so impossible to let go of my non-memories of romance. I can’t seem to bear the thought of losing the items of imagination that existed none. I suppose it’s just the consequences of life when you’re imprisoned within your own body. I...
by Ricky | Aug 8, 2015 | This is My Life
Are you excited about life? I suppose with Duchenne muscular dystrophy, there technically isn’t much to look forward to, especially when you get to a certain age. Though stability exists, there are still times when you awake without knowing what to expect in terms...
by Ricky | Aug 5, 2015 | Prose
As someone with Duchenne muscular dystrophy, the world expects me to be an “inspiration”. However, I’m nothing admirable. I’m just a man in a wheelchair, a sinner saved by grace. 2 Samuel 7:18: “Then went king David in, and sat before the Lord, and he said, Who am...
by Ricky | Aug 3, 2015 | Duchenne
While mothers are usually the main caregivers of children with special needs, fathers are the ones who keep the family unit intact behind the scenes. In many ways, being a father is to also be the silent hero. It’s finally time to break that silence. Here are ten...
by Ricky | Jul 30, 2015 | Letter Box
Dear Dystrophin, Did I ever tell you how much I miss you? I often look through my childhood photos and remember how good we were together. It was you and me, partners in crime, unafraid of all things ahead. Though I’d fall on occasion, you were there to pick me up…...
by Ricky | Jul 28, 2015 | Romance, or Lack Thereof
Ironic, isn’t it, how things work out sometimes? You spend the entire day readjusting your cushion because of excruciating numbness and pain and right before going to bed, the last try makes everything comfortable. I wonder if dignity exists in this death I call my...
by Ricky | Jul 27, 2015 | This is My Life
In my eyes, there was always a glimmer of hope that took me away from Duchenne muscular dystrophy. I remember in first grade when the symptoms began to manifest, my weak legs had a great effect on me. I had much difficulty returning to my feet after sitting on the...
by Ricky | Jul 21, 2015 | Prose
Doesn’t it break your heart, seeing child sponsorship commercials with African babies covered in flies? It’s impossible to watch television without having them plastered all over your screen. If such organizations actually cared, the budget for advertising, along...
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