by Ricky | Jul 11, 2016 | Duchenne
Amid the immense obstacles of Duchenne muscular dystrophy, it’s easy to forget that the ones caring for us are dealing with not only difficulties, but an impossible task. Our main caregivers, usually mothers, manage the unmanageable, which is crucial to bear in...
by Ricky | Apr 6, 2016 | Duchenne
There is no denying that the symptoms of Duchenne muscular dystrophy steal away our physical dignity. Even in normal life, death eventually consumes and our bodies decay, only no one is an acting witness when we’re in the grave. However, with this disease, everyone...
by Ricky | Jan 27, 2016 | Duchenne
How do people in wheelchairs take a leak? You’re probably thinking urinals, or even diapers… oh, hell no! Instead, I use condom catheters, like jet fighter pilots, since it’s obviously a war crime to pee on the enemy. When I first discovered them, it was quite the...
by Ricky | Jan 4, 2016 | Duchenne
There’s no denying; without my mother, I wouldn’t have made it this far, and not just on a physical level, but every facet of existence. Yet in the same light, I’ve also come to understand that she can’t live without me either. It was only recently when I nearly...
by Ricky | Dec 4, 2015 | Duchenne
There always existed a bit of controversy surrounding the fact that I didn’t want to be an inspiration. I was even quoted in the Toronto Star for saying this a few years back. I, however, never understood what the fuss was about. Unfortunately, the “I” word is one...
by Ricky | Oct 12, 2015 | Duchenne
How do I encourage myself? Everyone has an escape, whether it be sports, going out, etc., but for those who are physically compromised, including myself, and spend a great deal of time in a mental environment, we rely upon our imaginations for motivation. One of my...
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