by Ricky | Jan 18, 2016 | Letter Box
Dear Duchenne muscular dystrophy, This journey has been a long and winding road, and not only for me, but you as well. Both of us continue fighting relentlessly with the finish line moving further away. I know it might come as a surprise, but I wanted to say thank...
by Ricky | Dec 24, 2015 | Letter Box
Dear Taylor, You know that moment when you realize the pathway towards romance is no longer a part of your destination? I often imagine myself surrendering to stage music from the golden days, dancing in the dark with no one. The bittersweet melodies resonate within...
by Ricky | Nov 5, 2015 | Letter Box
Dear Duchenne Friends, When I joined our community some years ago, I set out to promote my first ever book that spoke in the perspective of a man diagnosed with this disease. It was not my intention to become one of our many voices. However, as I continued getting...
by Ricky | Sep 28, 2015 | Letter Box
Dear Duchenne Boy, There isn’t a day that goes by when I don’t wish someone had written me something similar. No matter how many loved ones are near, adversity is an unavoidable reality you must face alone. No one can save you, except yourself. I’ve lived too long...
by Ricky | Sep 3, 2015 | Letter Box
Dear Duchenne Moms, You’ll have to be much stronger than you already are. If no one should tell you, everything is not going to be okay. Nothing gets easier, while life remains merciless. I know it well, having to face this disease for such a long time. I may be...
by Ricky | Aug 17, 2015 | Letter Box
Dear Future Wife, There are places in my heart that are yours alone. In them I linger, thinking of you. As you plunge your quivering lips into mine, I gasp for my final breath in the softness of your mouth with teardrops in our kiss. Closing my eyes to this...
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